Monday, July 7, 2014

Fishing on the 4th of July

We aren't huge 4th of July fans. The kids don't like the loud noise of the fireworks, so we usually avoid that. But we still manage to get out and do something fun. We took advantage of the long weekend. On the 4th, we headed to the Farmstead and did a little bit of fishing. We were not alone in our idea. The place was pretty packed.

First, we stopped by the one room school house.

Then we walked along the apple orchard. Noah is crazy about apples.

Next up, Noah rang the cow bells.

We headed over to the fishing hole. They have been eager to fish, but Alex has not been with in our last couple visits. 
Alex handles baiting the hooks.

Nik barely put his bait in the water when...

he caught a fish!



He was so excited!

Noah kept at at. He had fun hanging out.

Before long, Nik caught another fish!

After we ran out of bait, we decided to head home to BBQ. It was the perfect day to eat outside.










Friday, July 4, 2014

Getting crafty

It's 4th of July weekend. We really needed some quality family time. The last couple of days, we did some crafts to celebrate the 4th.

It's not like these ideas popped into my head on their own. There are so many cool ideas up on Pinterest, or just Google for them.

The first one is just 3 simple supplies, Elmer's glue, glitter, and some cardstock.

We squirted some glue to look like fireworks erupting, then sprinkled 3 different colors of glitter (red, blue, and silver). Shake the paper a bit to get the glitter spread out, then shake off the excess.




Next up was puffy paint flags. There are different recipes to make puffy paint. Some use glue, and some don't. I just used shaving cream (cream, not gel), and paint. Pretty simple. Mix them together and you get puffy paint. Again, to stick to our patriotic theme, I used red and blue paint. I sketched out a flag shape, and let the kids paint away. The best part is the room now smells like shaving cream! And puffy paint is such a great craft for kids on the Autism spectrum who crave sensory activities.


Happy 4th of July!


Saturday, June 14, 2014

A Father's Day tribute to the dad's of special needs children

Fathers deserve their day in the sun. But this is a special shout out to the fathers of special needs children. You deserve more than a day of dedication, but I suspect that you are just glad if you get an hour to yourself. Here are some reasons why I think my husband is an amazing dad to our sons living with autism.

Patience. Your cup runneth over with this stuff. You are calm among the storm that is autism. In our case, x2. You are the calmest, most easy going person I know, and I love you for it.

You have developed thick skin over years of hearing co-workers and family share their kids triumph of honors, high SAT scores, college acceptance, and every other milestone imaginable. I know it must be a dagger to the heart some days. But you keep it to yourself.

That brings us to bottling things up. It's not the healthy way, but men do it. It simply isn't acceptable in society for a man to break down in tears. You handle your emotions so well. You don't get to cry it out like moms get to do. You bottle it up deep inside you. It must be so hard to be the strong one all the time. I am glad to be there for you when you feel like releasing the emotions that are kept hidden away from the rest of the world.

The stress that you carry from day to day can weigh you down. It's no secret that we face challenges that many people will never know. As the bread winner in the family, I imagine that you carry around a great deal of stress. You worry about being able to provide for our family, and meeting the financial demands of caring for special needs children for years to come. Somehow, you manage to do it all.

You work hard. You are dedicated to your job, but still manage to be a good father. Soccer, basketball practice, and taking over home making duties while I work on Sundays. Even when you are traveling for work, you manage to use facetime to be a part of our lives every day.

You never give up hope in our boys. You believe that they can achieve. That outlook is something that our sons see every day. You always try to teach the boys everything that they need to know to be as independent as possible. And on those days where it's hard for me to push ahead, you are there to encourage and remind me what our ultimate goal is. For our boys to lead productive, independent lives. You are always there for me. On the days when I want to cry, feel discouraged, or scared, you are there to lift me up.

But the most amazing gift that you give to us is unconditional love. You always let us know that you love us, no matter how hectic, exhausted, frazzled we may all be. Alex, you rock my world. Thank you for being an amazing father.

Happy Father's Day to all the dads of special needs children.





Monday, June 9, 2014

Why we travel.

Alex just returned from a trip to England, and I wanted to share some pictures on my blog. And what a better time to discuss what travel means to our family. Travel is important to all families. It gives us a chance to connect with one another, without the distractions of work or school. For a family that is living with autism, travel couldn't be more important. Sure, there are some major challenges, but with it are such sweet rewards.


Buckingham Palace.

Alex captured so much of London in this shot. The London Eye ferris wheel and classic architecture to the left, Big Ben, a double decker bus, and a collection of British flags straight ahead.

We never let our kids diagnosis stop us from going out and exploring things. Even from a very early age, we tried to get out there and expose the kids to different things. Sometimes, it was just a quick weekend trip to San Diego, or Palm Dessert. Other times, it has required 5 hour flights across the country, then a 4 day cruise. Always fun to be on a plane for 5 hours with a 1 year old, right?








As the kids began to display signs of autism, we did have to adjust a bit. Let's face it, there are stares from other passengers when your kid is hand flapping, rocking, or doing whatever he does to cope with the world around him. So traveling involves some thick skin.

And it's so important for us to plan. Every little detail is thought out. If we are flying, is it a non-stop? Are our seats together? Can we sit toward the front of the plane? Noah get's anxious waiting his turn to exit the plane. And while we are on the subject, he can get nervous getting on the plane. Is there pre-boarding? How about TSA procedures? We try to pick early flights, hoping to avoid some of the crowds. What about flights, non-stop, direct, change of planes? Let's talk gear. Each kid get's their own backpack, filled with things to keep them occupied and fed. Snacks, books, ipads, portable dvd players, sticker books. The list seems long, but it ensures that the kids stay occupied, and aren't a nuisance to other passengers.





So you are probably saying to yourself that you do all of this with your kids too. You pack carefully, consider their needs. Of course, these are the things that every parent should do. But preparing a child with autism has a totally different meaning. You have to consider their needs carefully. I guess what may set us apart, is the fact that my kids can potentially have a huge meltdown. As in meltdowns to end all meltdowns. I don't mean the "I want this toy and if you don't give it to me, I will scream and cry" type of meltdown that a toddler might have. I mean cries as if in pain, rocking back and forth, etc. Thank God we are past all that now. And I really do believe that our journeys have contributed to our kids moving past that. 




Pub established in 1549.

So back to preparing for a trip. Social stories are always used. I work on pictures and stories to tell the kids what they can expect. I try to be as detailed as possible. Hotels, different museums, what food will we eat, etc. And I try to include as many photos as possible. My kids are visual learners. 

With every journey, both big and small, we always try to push a little more each time. In the early years, we tried to keep things short and sweet. If we were at Disney World, we were only in the park for a few hours in the morning. We probably spent more time unwinding at the hotel, than at the theme park. Waste of money, you say? Not in our eyes. We built in learning experiences. At EPCOT, we did the passport around the world, where Nik (Noah was not verbal enough) went around the different countries to get his passport stamped, making eye contact and saying hello. He even learned how to say hello in Japanese. My kid, who was struggling to speak at that time, said hello. Sure, he could have said hello to someone at home. But not with the added stimuli of a crowded theme park, while learning to patiently wait his turn. Money well spent.


Another old pub, Ye Olde Cheshire Cheese. Charles Dickens used to hang out here.


I can recall Nik and Noah's teachers back in California, saying they could tell that we take our kids out into the world. Noah could barely talk, but told his para about a pelican that he saw on his cruise. They could talk about things that they saw in the Smithsonian. It's one thing to read about something, but to see something first hand, really hits home with my kids. And they are little sponges in museums, absorbing every little detail. Years later, and the kids can recall something that we saw in the Field Museum. Sue the dinosaur was a big hit with them. 


Shakespeare's Globe Theater






Tower of London


Traitor's Gate.



Life would be so much easier if we didn't go anywhere. But it would be boring. Life would be easier if we just continued to go to Disney vacations. Disney is safe. Our kids know it so well. They have fun. They know what to expect. We love Disney vacations. And we would be quite content just continuing to go to theme parks. But if we continue to do that, there is limited opportunity for growth. How can we continue to push for progress, if we don't try to move outside of our comfort zone? The answer is simply this. We must take the road less traveled at times. The road where our kids will have to learn how to maneuver unknown surroundings, cope with different cultures, explore the and unfamiliar. In other words, it's time to move away from the mouse and see the rest of the world.




Ok, can you tell that I love Tower of London?

Oh, ok, maybe one more. 


Candy store!








Fish, chips, and mushy peas.

Other than the Bahamas, we haven't left the country with the boys. That is the next big test for us. We are fortunate that Alex is our guinea pig. He travels for work, and paves the way for us. His experience in New York City was a big help in us preparing the kids for our trip there. I have no doubt that Alex's latest trip to England, will some day pave the way for us again. Sure, it scares me a little to go so far away from home with our kids. Especially when we will have to contend with differing diets, time zones, and cultural differences. But I know our boys will rise to the occasion. They always do. And there will always be a Mc Donald's.